Alternate Ending for Cathedral

As I opened my eyes, I looked at the sheet we were drawing on and saw how close we were to making a cathedral. “What do you think?” said the blind man, “Did it come out the way you thought it would?” For a moment I couldn’t answer him. I was surprised at how well the cathedral was drawn out but became confused about how close we were. “It’s not quite a cathedral but it’s close enough,” I said, not giving him the satisfaction that he helped me draw it. All I could do is look at the drawing. While my wife and he sat on the couch examining the drawing, I went upstairs and sat on the edge of the bed. I closed my eyes again and tried to envision myself in his shoes. All I saw was darkness and emptiness surrounding me. I tried to paint a picture in my mind with little things a house or a bus to see how my brain would picture those things. I then open eyes, grabbed my pen and notebook and started drawing. Again, I drew a house and a bus as my references to start with. Now, I went ahead and closed my eyes and attempted to draw a house and a bus. I opened my eyes and saw crooked lines that looked nothing like a house or a bus. I tried to enter his world but wasn’t able to understand it. I went downstairs and firmly asked him “How did you help me draw that when you’re blind?” They both looked at me and my wife said, “You can’t come downstairs and be demanding like that.” The blind man didn’t say until a few moments later, “what do you mean bud?” I sat next to him and said, “How did you guide me through that drawing? I don’t understand since you’re blind you can’t see what is being drawn.” I kept looking at him waiting for him to answer him. I needed this answer to come from him. Finally, he said, “I’m still not sure what you mean” In frustration, I grabbed a pen and paper and told him to draw something on it. By his face, he seemed off-put by this idea and simply said no. I grew even more frustrated with him and slowly grew envious of him. I know he’s blind, but how does his world look? What makes his world so different? Suddenly I heard him say, “Why are you so interested in how I see the world around me?” I firmly said, “Because I want to know how you live your life as a blind person” after I said that he let out a soft chuckle and said, “Did you try and draw with your eyes closed?” I hesitated to answer but he continued, “Drawing with your eyes closed or walking around the house blindfolded isn’t the same, it doesn’t work like that” I was confused and told him, “I was trying to walk in your shoes, trying to understand what it must be like to be blind” he let out as quiet sigh and said, “Sometimes walking a mile in someone else’s shoes just puts you a mile further away from understanding someone else’s experience,” I asked, “what do mean?” and I sat next to him to listen to what he had to say, “When you walk around blindfolded around your house trying to do tasks, you bump into things since you are not used to that and when you draw with your eyes closed, and look at it, they’re just scribbles” I continued to listen, “This creates this idea that people who are blind are incapable of doing everyday tasks” “In what way?” I asked, “Essentially when people try to imitate what it’s like to be blind, they will create this idea that those who are blind are clumsy, uncoordinated, and unable to live alone” As I sat there, I thought about how he helped me draw a cathedral when I couldn’t even describe it with words. “Yeah, okay, I think I get it now,” I said to him, “Yeah I see what you mean Robert” “I’m glad that you’re starting to understand it now, bud,” he said to me. As we sat on the couch for a little while longer, it was three in the morning, and it was time to go to bed. As we headed upstairs, I asked him if he needed some help and he replied with, “I would appreciate it if you could lead me to where I would sleep at”, as I lead him to where he would sleep, I told him if he needed anything to just let me know and gave me a nod of conformation. Once he was in bed, I told him goodnight and walked towards the bed where my wife was already deep in her sleep. I quietly got into the bed and felt my eyes close after a long day.

Writeup

For my major project, I decided to create an alternate ending to the short story Cathedral we read by Raymond Carver. What I wanted to accomplish through this project was to emphasize the idea that people who are able-bodied cannot simulate physical disabilities because it creates a harmful image towards those who have those physical disabilities. To begin, I used Carver’s Cathedral since it had an ending that was up to the reader to determine, I found that to be useful to expand upon it. In addition, Cathedral has 2 characters that clash since one has a physical disability (Robert) and the other doesn’t (The Narrator). The narrator gives a very closed-minded approach to those who have a disability and I wanted that to be shown in this alternate ending. This is crucial because, throughout our class readings and discussions, there is a lot of discrimination and lack of awareness towards those who are physically disabled and how they are treated. In addition, some people do try and simulate a disability by walking around the house blindfolded, only using one hand for a day, etc. So, in my alternate ending, I had the narrator do one of these simulations to give him the impression that he knows how Robert thinks, feels, and acts like someone who is blind when in fact it is more harmful than progressive. In addition, I wanted to have Robert educate the narrator in a way that isn’t aggressive since he is pretty calm in the original short story, but also bring attention to the fact that what he did was wrong and that he shouldn’t do it again. As someone who has a relative who is blind, I start to see how it’s not about trying to walk in their shoes but it’s about helping and assisting that person to be comfortable in their own shoes and have them slowly build into this different lifestyle. Even though in my project I had the narrator slowly understand what Robert is trying to say when he says, “Essentially when people try to imitate what it’s like to be blind, they will create this idea that those who are blind are clumsy, uncoordinated, and unable to live alone”, it is not always that easy to understand the lives of those with physical disabilities but one thing we can do is listen to what they have to say and not ignore it. Finally, I wanted to bring out the topic of how people with disabilities can independently do everyday things and push away from the dehumanization of those with physical disabilities. Towards the start of my alternate ending, I had the narrator call Robert “the blind man” since the narrator sees Robert as below him. Towards the end, I have the narrator call Robert by his name to show some growth towards seeing Robert as another person and break away from the dehumanization he uses by calling him “the blind man.” Even though this is an alternate ending to a short story with no concrete ending, I wanted to shed light on how people who are able-bodied should not create a false image of what a physical disability might seem like through a simulation that is harmful.

Word count: Alternate ending- 830 / Writeup- 538

“I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work.”- Brian Cruz-Lovo

Discrimination and Disability

The direction I decided to take my major project was that of mixed media and poetry. Throughout this course, we have discussed a great deal about disability and discrimination, which I have witnessed since some of my earliest memories. Because of this, I wanted to create poetry about these different experiences. As someone who has not ever been drawn to writing poetry, I found myself enjoying expressing my experiences in such a manner. This project aims to show that no matter what kind of disability a person has or how someone came to be disabled, discrimination does not pass over anyone. Further, no matter how old you are, there is no age limit to partaking or witnessing discrimination. I was inspired by Simi Linton’s “Reassigning Meaning” work. Focusing on the “Nasty Words” portion and having these words, as well as others we’ve heard throughout this course, surround the poems. 

The Process

Going in chronological order to the discrimination towards disabled peoples that I witnessed, I wrote: “Full Grown.” As a child, I was at a local market, and we passed by a couple who both had dwarfism. My little sister, not understanding what was wrong in the situation, shouted a name at them, and the mortification I witnessed from my parents and the couple’s reaction resonated with me. This is the earliest recollection I have of experiencing discrimination towards disabled peoples. The discussion my parents had with my sister and me later about never calling people names that you would not want to be called impacted me. However, as I got older, I became aware that not all people were raised similarly.  

            In the first grade, there was a teacher that everyone would talk about, and as the school was designed in resemblance to an outlet mall, everyone saw all the teachers. In “Childish Fears,” I wrote about such a teacher whose arm did not reach past her elbow. When interacting with other children while this teacher was in view, there would always be stories about how she lost her arm and the horrible things she would do to children. This instance reminded me of this course’s discussion on viewing people with disabled bodies as monsters. Children have very imaginative minds, and when one tells a story, it often gets passed on to others. However, in this case, it turns a woman into a monster. This carried on for two years of my childhood, always confused when seeing this teacher talk to my teacher and having other students tell more rumors. However, by the end of second grade, my parents encouraged me to ask the teacher what happened, knowing these were nonsensical fears. Looking back with the knowledge I have now, once I was informed of the reality of the situation, all these fears seemed meaningless. This was simply a woman with a history, and children filled an empty story with a monster tale. 

The poem “Taken Senses” is about my third-grade teacher who had melanoma on her nose, this caused her to lose her nose, and the process was a very long one. My class was the last one she taught throughout the majority of the year for the next three years, and in turn, I got to witness one of my favorite teachers be talked about in a bad light. These students did not know her when she was healthy and always present, and due to her always being in the hospital, I heard students and parents alike complain. However, what astounded me was during parent-teacher nights, she never had any parents present to say good things, and the only students who would visit were prior students of hers. In passing, you could hear students talk about her prosthetic nose, and there would be the occasional few that asked to see underneath. At first, she would show students, but this allowance was quickly gone after seeing their reactions. This experience is something that I never genuinely analyzed until this course. The impact that having a disability can have on someone who has lived their whole life healthily. 

Growing up, I knew many people who were color blind; however, I only knew one person who was partially blind. Except in this student’s case, he did not advertise that he was, and most students thought him odd, but he could see little to nothing. “Spilled Water” is a poem about this student and the fact that he was bullied since people could not see his disability. Most of the time, Collin did not participate in group activities, but this day he did; everyone was excited, and we all were assigned our own tasks, and we all rushed to complete them. However, as the poem depicts, not all tasks were assembled perfectly. The teacher we had for this course was not the most understanding of when mistakes occurred, and when water was spilled, she lashed out at Collin. Even though Collin did not advertise that he was visually impaired, it was something that the teacher was privy to. I related this poem to that aspect of this course’s curriculum. When someone is not viewed as disabled because of their appearance, they face discrimination of a different kind as there is no accommodation. 

            The poem “Senseless Noise” is about an experience that would make anyone-knowledgeable about disabilities or not- livid. In high school, the few who lived near me rode the bus with the disabled student’s home as no other bus came to the area. One afternoon, another student brought a friend with her on the bus, and they both began to mock and antagonize the nonverbal student in a wheelchair. This went on for a minute, and then they moved their attention towards another nonverbal student, and that was the end of it after a few harsh words were said to them. This relates more to autism than it does to the disabilities that we have discussed thus far in class. However, this instance was one of the most vocal I have heard in terms of “nasty words” being said to disabled people. The mockery and scorn that these girls had towards these two students demonstrated just how much they were impacted by being around other people they viewed as abnormal.

I hereby declare on my word of honor that I have neither given nor received unauthorized help on this work. 

Lauren Lemon

Word Count of write up: 1,062

Linton, Simi. “Reassigning Meaning.” Claiming Disability: Knowledge and Identity. NYU Press, 1998, pp. 8 – 33. PDF, Accessed 11 November, 2021. 

Major Project: Tristan Barber

Beyond Yesterday’s Grasp: A Disability Perspective

Project Writeup

In this project, I analyzed one of Watercress’ (my game development studio) previous games, Beyond Yesterday’s Grasp, from a disability perspective. Beyond Yesterday’s Grasp follows a disabled POC main character and her trans partner as they solve a ghost’s murder mystery. This project came in three distinct parts.

The Process:

The first part was an initial playthrough of the game, taking roughly three hours, with a write-up based on initial impressions and further breakdown with disability and intersectionality as the focus. While this is a choice-based game, for the sake of brevity, the “true ending” is the focus of the paper and the initial playthrough. During my playthrough of the game, I wrote down notes on certain factors of representation, with particular respect to dialogue and interpersonal interaction between the disabled, trans, and normative characters within the story. 

The second part involved an interview with one of the original writers and leadership on the project, over roughly two hours. This writer is a disabled trans person, offering unique insight into the intended final product and representation within Beyond Yesterday’s Grasp. This interview largely centered around the intent of the initial project, the development cycle of the game, the representation within the game, and the personal connections between the diverse team and the project they released. An abbreviated text write-up of the interview was included, and this interview helped inform the end product of part one’s game breakdown. For the sake of context, I will place the interview first before the analysis in this post.

The third part involved running through an accessibility checklist, which is also provided, with a short write-up on how the game rated, and on accessibility as a whole within the industry. This checklist was provided by GAG (Game Accessibility Guidelines), a website with numerous resources for making a more accessible gaming industry. The checklist was then modified by my studio’s programming department, removing accessibility requirements that do not pertain to visual novels. This primarily takes controls and content into consideration, and the ultimate write-up goes into further detail on the rating I give the game, and why the game came to have that rating. From there, I explore why many games have similar ratings, with a short explanation of how inaccessible games are, and why. I have also included a link to an accessibility talk I gave at an industry event last year, as a resource for all to use. 

Goals:

My goal for this project was simple: Explore a project my studio produced through a disability perspective, gain further understanding of representation and intersectionality, and determine where the project may have fallen short, with the intention to use this project as an opportunity to improve disability representation and accessibility in all of my future projects. After much reflection, my approach to representation and accessibility has changed, with a greater focus on both factors for all future releases. In particular, ensuring the development of projects allows time for disabled workers, and that all games meet a minimum requirement of accessibility before the final release is even considered. Likewise, much of this was unknown to me until now – disabled voices are often unheard even unintentionally, and ensuring they are heard will be a prerequisite for all future projects of mine in the future.

Developer Interview

Can you give me a brief introduction to who you are, what positions you held on the project, and what parts of the development cycle you contributed to?

“I am Penelope X. Pilbeam, and I was originally a lead writer on Beyond Yesterday’s Grasp. I was eventually escalated to Co-Lead on Beyond Yesterday’s Grasp. I also did a lot of the scripting, some of the editing, really every corner of the game has some of me, for sure – including [some of] the art assets ’cause I did create a ton of those myself.”

This game follows a disabled woman of color and a trans man as they navigate difficult social and paranormal situations – was any of the narrative pulled from developers’ personal experiences?

“Yeah, obviously none of us have a missing limb – none of us are amputees that I know of, but Ginger [The Project Director] was someone that had a lot of chronic pain, obviously I have a lot of trauma in my own life that went into the character, so Alex as a protagonist had a lot of pathos from both of our lives that sort of blended together. Ginger talked a lot about how her health problems were pretty scary, her chronic pain that I don’t think at the time she had an explanation for – I don’t remember, but the only thing that she could do was take Ibuprofen, and eventually she’d become immune to Ibuprofen so it was a countdown, which was scary for her. So, that went into a lot of Alex’s characterization.”

“Chronic pain looms much larger in Alex’s life than the fact that she’s missing an arm, because the idea was that she was really fucked up by being in this car accident, and so, the trauma was more than just the visible, it was the invisible, it was her body and then her heart – she was genuinely fucking traumatized by this horrible accident she was in, so that was the idea. You can actually see in the game, very little of Alex’s pathos as a character is in the fact that she is literally missing her arm, outside of the fact that that’s how her powers work. Most of it is rooted in her unseen damage, that stuff that is unrelated to her amputation.”

In working on a month-long project, how did you and the other writers prepare for the topics and people you’d eventually be representing in the game?

“I think that obviously we wanted to design these characters, so Alex went through a lot of different permutations as we went along. We started out conservatively, we didn’t know how liberally we wanted to go with the framing of the story – obviously Ginger and I are pretty leftist, we were both on Tumblr a lot during 2014, so we didn’t want to do a story about a bunch of white people, we wanted a diverse cast, so we were trying to figure out how far we could push that envelope without it seeming overwrought or unbelievable. To some degree, Alex being an Indian-American was because she was based on an actual person – the actress who played Mara in House of Anubis, which Ginger drew from liberally to create her proposal originally. We wanted our character to look like that one, even though Mara wasn’t the main character of House of Anubis. That was the main reason why she was Indian, and not like Mexican or something like I am – because it was based on that character, a reference of that character.”

“Caelum, was again, based on some guy from the show originally – someone that Ginger liked a lot. That character was a major part of her original proposal, so it was always kind of a done deal that he was going to be in the game, but I was trying to figure out how to make him more interesting than just a straight guy, so we decided on him being trans because it just made sense for the character, especially given the overarching theme of traumatic pasts and baggage from “yesterday”. So, that was really important for us. I don’t think I would have enjoyed writing Caelum nearly as much if not for the fact that we did make him trans. So we did stuff like that, figuring out how we could persuade ourselves to like these characters and be interested in them, and it just went from there.”

“Basically, we had these characters, and we created Genevieve, she’s the one “normal”  person in the game – normal in the sense of privileged – the kind of person you’d expect to see in these sorts of stories, the person that’s always cast in any ghost story visual novel. She’s the one character that is a privileged, white, cis girl – of course, she’s a ghost, and she’s kind of a villainess in this story, so it’s interesting that way, and that dynamic is interesting, and comes into play in that story. It was really just a matter of hashing out these characters, their beef, their various traumas and such, and developing a story around them. It was meant to be a very character-centric story, we weren’t going to do just a ghost story, it was plotted more like how a CW show would be plotted. Lots of relationship drama, family drama, stuff like that.” 

What inspired the concept behind the project, and considering the month-long development cycle, how well do you feel that the finished product reflects the original concept?

Given more time, would you have changed anything?

“[It drew inspiration from] House of Anubis, it was a Nickelodeon show, part of the teen-targeted Nickelodeon programming, dealt with slightly more mature themes, but still very much a Nickelodeon show, paced and scripted like one. Ginger was, what 19? She was young. With our age difference definitely came different approaches to how we wanted to write the story, even though we were very simpatico. I had watched the show at her behest, to better understand her creative vision for this game – it was her proposal, I wanted to create something that she felt like she had been the architect of. I wanted to have a firm grasp of what she meant, what she was trying to accomplish, what vibe she was trying to go for.”

“I wasn’t trying to go into business for myself with this VN, I was trying to help Ginger make her vision reality. So, while I do feel like I wound up having way more of a practical role in making the game happen, the intent was always to make Ginger’s game. It was a matter of Ginger taking on more than she could handle as an 18-year-old who was doing college at the time, and me being a much more experienced VN developer, who was much older and had much more free time on her hands. While I do feel like I created most of that game, I feel like I created it to spec. It was never about me, it was about Ginger – so when Ginger had to withdraw towards the end of development because of her own health problems, and because of her life, I do feel like most of the game ended up being my creation – but again, I wasn’t trying to create my own VN, I was trying to make her’s. She was the lead writer, the director of the project, but it wound up being very different from how it would have turned out if she had done all of the things I had done for her, very little would have stayed the same.”

“If I had a year to work on this project, there would have been more characters, the gameplay aspect would have been longer, we created more for this game than we wound up being able to put into the game. We only had so many voice actors, so many artists, they could only draw so much – it wound up being a very self-contained game with a very small cast.” 

Alex, the main character, communicates through her missing arm into the realm of the dead. What was the inspiration behind this choice? Are there any other aspects of Alex (and Caelum) that you want to highlight?

“Actually, I will tell you what the inspiration behind that choice was, because it’s very interesting. A long time ago, many many years ago, I had a concept for a deconstructive Harry Potter fan fiction – it was a parody of what they call a Peggy Sue fic, which is when somebody goes back in time in their own body to do a choice differently. I had the idea of this character who was Harry Potter, who had gone back in time to inhabit his childhood body, but wound up not being incarnated into the right body – basically, it was a commentary on the ethical ramifications of killing your past self to take over their body, and so, he misaims his spell to go back in time to change the future, instead of taking over his own body, he takes over the body of Pansy Parkinson or something, ’cause that makes it more starkly clear how fucked up this concept is. At one point, he was going to try and acquire his old wand, and so he touches it, and he creates a paradox universe reaction, and his arm explodes – Pansy’s arm explodes – and leaves him with a stump. The moment he touched the wand, he killed the possibility of himself in the future existing. He destroyed that timeline, which killed him, which means he’s now a ghost inhabiting a body. The whole thing was that he was going to have an arm that was a ghost arm because he’s a ghost possessing a body.”

“Obviously I never wrote that fanfic for many, many good reasons, but I had had this idea of an arm that is thrust in the realm of the dead. They’re missing their arm, but they have a ghost arm, it’s vestigial, and it can manipulate the spirit world the way that a normal arm manipulates the physical world. This gives Alex the power to affect both – which is why she’s such a powerful character. That arm was reflective of the fact that even though she is alive, she has been through enough trauma that she’s partially a ghost. ‘Cause ghosts are souls left restless from trauma, she has enough trauma that if she had died, she would be a ghost. But she did not – she did blow her arm off – and she’s an aberration because of her being stuck in two different worlds. In the wall between the living world and the spirit world, there’s a hole and her arm is stuck in it and she can’t take it out. That’s how that idea evolved. […] I had actually written so much, I wound up drawing so many ideas from that outline for other projects that I have worked on, like ontological ideas of being alive, and death in the soul, strength in the soul, the qualities of the human soul, these are all things that I had been thinking about as a worldbuilding thing, and so, for Alex, I had had this idea lying around unused, so why not give her that power? That’s how she wound up having it.”

“Caelum was much more easy to design, ’cause Caelum was much more Ginger’s character, which is why Caelum is so simple, because Ginger doesn’t go as wonky into the weird ontological existential weirdness as I do. This is a genuinely good guy, who happens to be trans, and has a bad relationship with his parents, and that’s it. He was raised catholic, obviously that informs a lot of his pathos. The one thing I will say with Caelum is that, even though he was always envisioned as a trans man, it was a stroke of luck that he wound up being voiced by a trans man actor, because not even Maxi (Voice Acting Director) knew at the time that his friend was a trans man, so it kind of fell out that way. And we didn’t know it until after the game came out, and he was like, “this was my first time actually getting to voice a trans man like myself”, and were like, “wow, we’re really fucking glad you voiced the character.”

It’s been nearly four years since the release of this project, and a lot has changed since then – do you have any thoughts on contemporary media representation of underprivileged and marginalized groups?

“It’s trickier than it used to be – it is less obvious, now. People want representation in games, but they won’t simply go support somebody’s work just because it has marginalization in it. So, that’s a thing. You can’t simply market a game based on, “oh hey, it has a trans man character in it” because that’s not enough to motivate people. You have to do that, you can’t opt out of it either, but you have to do more than that – that on its own is not enough to impress people. It’s hard especially because, I want to write stories about trans people – absolutely I do – but I don’t want to write stories that are about just being trans and transitioning, as my transition was almost a decade ago – I’m over it. I just want to see characters like me doing cool things in stories I like, I don’t want to read my one-millionth trans character figuring out they’re trans, coming out of the closet and doing all of the shit I did ages ago that I’m over, I want to see trans people be heroes and shit, I want them to be in genre. I don’t want to just tell transition narratives, ’cause they bore the shit out of me. I know that a lot of people are less far along than me and they want to read those, and maybe they will never be tired of those, but for me, I’m done.”

“We’re coming up now on a very electrified third rail, about the proportion of trans male representation in games and in fiction versus trans female. Look at the new Star Trek show – “Hey we’re adding two trans characters to the cast!” and both were assigned female at birth, one was nonbinary but both were AFAB actors. It’s like, okay, you’re not representing me. These are characters that are self evidently not trans women. But you think you have completed your obligation to represent us with these characters who are not us, and obviously trans men frequently believe the opposite, they believe that trans women are hyper-visible – they’re right, but we’re hypervisible as boogeymen that people want to murder. It’s not really like we’re getting positive representation. When a trans man is represented in fiction, it’s usually fairly well – you simply cannot say the same about trans women. I think that’s part of the problem that’s been going on, part of the discussion. What is good trans representation? No one is ever going to be happy with trans representation because none of it is enough, but there’s a lot more intra-community strife based on the subject. I didn’t mind in 2018 when we did Beyond Yesterday’s Grasp, I was like, “Hell yeah I want Caelum to be a trans man” and I wasn’t thinking like, “well yeah let’s have a trans woman”, like “there must be one”, I want this character to be a trans guy. Nowadays, I don’t know if I’d do that – I love Caelum – I just think that my priorities would be different, my sense of what I would feel comfortable writing about would be different, so, it would just be different – I would be coming at it from a different emotional place, with different objectives as a writer.”

Lastly, do you have any writings or projects in the works, or anything you would want to point readers to?

“I do have my Patreon, but the next big thing I’m hoping to get done for Watercress [our studio] is that anthology series, I still plan on doing that as a Christmas present – it’s a fun exercise to write fanfiction essentially for these old games, these epilogues basically, that celebrate the past. I’m working on Avitus, and that’s basically it for now.”

[Note: The anthology series is a series of epilogues for old games we developed in the past. Avitus is our flagship project, of which more info can be found on our studio Twitter, linked below.]

Links to Penelope’s Patreon here: https://www.patreon.com/nymphomachy

Watercress’ Twitter here: https://twitter.com/teamwatercress

Impressions and Breakdown

Beyond Yesterday’s Grasp, a game developed by Watercress, is an excellent case study in the interaction between disability representation and the individuals who write such stories. The game follows Alex, a disabled Indian-American, who reaches into the spirit world through the use of her amputated arm. She, alongside her trans-masc friend Caelum, solve a murder mystery in their dorm, ultimately fighting off a dangerous wraith and living to enjoy their lives together. In reading this narrative, and in deconstructing the representation therein, the representation of each of the characters is ultimately progressive. This is determined through the interpersonal relationships within the story and the narrative operation of the prosthetic arm in the plot – all given great perspective by the individual experiences of the writing staff.

When exploring the relationships between the two lead characters and the rest of the cast, three points of contact are worth deconstructing: the relationship between Alex and the dorm mother Jianmei, Alex and her co-lead Caelum, and Alex and the ghost Genevieve. Each serves to highlight different perspectives on disability, race, and gender, culminating in a diverse representation of the problems trans and disabled people experience in contemporary society.

The interactions between Alex and Jianmei, the house mother, represent the “well-meaning” normative reactions to disabled people. Their very first interaction, where Alex arrives with luggage at her new dorm in Act 1 Scene 1, follows as such:

Jianmei: "Do you need help with your bags?"
Alex "N-No thanks; I've got it."
Jianmei "No, seriously! I can help! It must be hard with that arm, so I can assist you!"
Alex "You don't need to, please! I'm used to it."
Jianmei "...Are you sure?"
Alex "Yes, absolutely."

From the moment Alex arrives at the dorm, Jianmei pushes this idea that Alex needs to be helped because of her physical disability – her missing arm. While not many would openly talk about the arm – and perhaps giving Jianmei a bit more credit, she does back off eventually – her insistence that Alex needs help because of her disability betrays an infantilization perspective of the disabled. This is largely accurate, something that many people with disabilities must suffer through, despite their ability to exist as adults. This is later expanded upon later in the narrative with Alex noting that Jianmei frequently stares at her arm.

Meanwhile, the relationship between Caelum and Alex gets off to a similarly awkward start, but one that shows the difference in perspective between Caelum and Jianmei. Meeting in the hallway, Alex uses her prosthetic to waive to Caelum, and he responds “I like your… arm?” (Act 1 Scene 2). This faux pas is something quickly worked around by both students, as Caelum eventually normalizes disability and relates with Alex through his own experiences with his catholic family. This is explored through a certain camaraderie – both are underprivileged and marginalized people. Importantly, Caelum, a trans male student, is forced to live in the women’s dorm due to the university’s poor management. This relationship portrays the intersectionality of gender and disability, with both groups being heavily underprivileged and abused by society.

As the story progresses, they confide in each other, with Alex talking of the traumatic death of her parents in a car accident (the same accident that took her arm), and Caelum’s experiences living with parents that hated him for being transgender. When Alex eventually explains to Caelum that she can feel ghosts with her missing hand, rather than doubting her immediately, Caelum jumps to action, asking what he can do to help. This display of trust, and this ability to suspend disbelief for the sake of his friend, shows a deeper understanding between the two characters than they have with the other members of the game’s cast. This is a progressive approach to their portrayal, as both characters avoid tropes and cliches while supporting each other with realistic approaches to their problems.

The last relationship to explore is between Alex and the ghost that plagues her dorm life, Genevieve. As a rich young girl murdered by her father in the early 1900s, she shows the vindictive, capitalistic approach to disability. Alex is a means to an end – only useful due to her ability to interact with the spirit world, and therefore capable of freeing her from her purgatory. When Alex proves to place her own life over the “life” of Genevieve, they have a physical confrontation, with Genevieve attempting to pull Alex away from her work. Here, the intersectionality between race and disability comes to the forefront.

Alex takes a stand against Genevieve, enforcing her agency, and tells the ghost off: “Did you simply assume that because I had brown skin, I’d just be another one of your servants? Piss off.” (Act 2 Scene 6). Genevieve backs off after this, allowing Alex to command her own life, but the damage is done. The ghost, and much of the world around Alex, sees her as something to be used, or thrown away – the worth of a life defined by their use to society at large.

While each of the character dynamics is important for the disability representation in the game, the real meat comes in what the prosthetic arm itself represents. The crux of the story revolves around Alex’s ability to sense and communicate with spirits through her “ghost” arm. In the interview with one of the lead writers, it was revealed that this was a specific choice to highlight the seen and unseen – how the most visible disabilities are not always the most debilitating or life-changing.

Chronic disability is an often underrepresented side of the disability spectrum, one that is incredibly hard to handle respectfully. Media stigmatizes it as drug abuse, depression, suicide – only a sliver of what disability covers. Here, the missing arm is a physical representation of the traumatic event that disabled Alex – the car accident. In this car accident, both of her parents died, and her arm was taken from her. In the same way that ghosts are created by traumatic deaths, a part of Alex was likewise killed, leaving her in the in-between, living in both realities while holding neither as her true home. This representation of disability is progressive, highlighting the importance of disabled voices, as they share unique perspectives that cannot be understood otherwise.

This representation goes deeper than just the narrative. Many of the writers on the project were disabled, especially in the case of the Project Director, Ginger. Suffering through chronic pain from an unknown source, the anxiety over her own worsening condition and her growing immunity to painkillers informed the position Alex would eventually take within the story. Disability, and becoming disabled, can be a terrifying experience, especially if it is the result of an already-traumatizing event.

This holds true with the transgender experience as well. Like disability, it isn’t something that can be “treated”, it’s a unique experience, it’s part of who you are. Like with disabled communities, transgendered people face limited access to important community resources, and have been historically marginalized and silenced. Both Alex and Caelum see this in each other – as did the developers of the project – and the narrative allows them to speak their experience into reality, to gather agency in a society that wishes to remove it.

Works Cited:

  • Watercress. Cautionary Tale: “Beyond Yesterday’s Grasp”. Windows PC version, April 2018. https://watercress.itch.io/cautionary-tale.

Accessibility Write-Up

In playing through the game, I took extensive notes on how accessible the game is to greater audiences, with particular respect to the disabled community. While I believe the narrative is an excellent representation of disability and intersectionality, the game itself falls woefully short in how accessible it is to a wider, non-normative audience. While I have included a checklist going through much of the accessibility options needed in modern games, I will expand upon it here and relate it to general, informed observations of the gaming industry at large. For the sake of brevity, I will explore two important aspects of game accessibility: motor access and cognitive access. This means that I will not be talking on subjects like content warnings and options thereof – albeit those are incredibly important as well.

From the very first interaction with the game, it becomes apparent how poor the accessibility is. The intro cinematic is unskippable, the main menu requires a left click of the mouse to even access, and the UI is poor and visually unappealing. It is a general rule that games like these – visual novels – need to have mouse-only and keyboard-only functionality, and it’s becoming a greater necessity to include gamepad-only functionality as well. This game is marginally accessible with mouse-only, and is completely unplayable in other modes. 

For cognitive access, it isn’t much better. There are no font-change options, and while the text is relatively dyslexia-friendly, allowing for increased text size is a must. Some events in the game include flashing lights that cannot be disabled, and some of the transitions involve fast-moving objects, which also cannot be turned off. Accessing each individual game is an entirely visual process, with no subtitles for each game (as Beyond Yesterday’s Grasp was part of a three-game anthology). Buttons don’t have visual indicators for selection, and some important narrative portions of the game are done through audio only, which is particularly bad.

While contemporary Watercress games handle accessibility better, this serves as a great example of how accessibility is often considered in game development – it’s a stretch goal. Some studios can afford it, but accessibility is often not taken into consideration for pre-flight or pre-release standards. People with disabilities cannot access all of the games that normative people can, and this isn’t something we can blame on the disability – in many cases, if the developers spent more time on accessibility and considered it a foundational part of the game, it would be accessible.

From a personal standpoint, going through the game for this final project was a great exercise. I’ve had the opportunity to see how our games used to be, what our games are like now in comparison, and what we can do to better ourselves in the future. Watercress is already undergoing an accessibility patch for Beyond Yesterday’s Grasp and the anthology Cautionary Tale as a whole, and I hope that other game developers will take the time to look at what they can do better as well.

Link to Accessibility Sheet: https://docs.google.com/spreadsheets/d/1IIomb-CFSuylxE4wfzry3hCjFy0LQ_UsKrJ9511q0vY/edit?usp=sharing

And, as promised, here’s a link to the accessibility talk I gave last year: https://www.youtube.com/watch?v=RcFHcRyErTw

“I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work.” ~Tristan Barber

Deprived of Resources

By: Mary Ainsley Fox “I Pledge”

Word Count: 1788

The portrayal of disabled people in our assigned readings and even in our world today seem to not receive the same amount of resources they may need and/or would benefit from. Dating from years back, the disabled population have been seen as sins, collateral damage in a sense, and a “freak of nature.” Back in the day, a person with physical disabilities was seen as God striking down on them and their sins in the past life. Another excuse and honestly a complete insult is that God gave two flawed people who have made numerous mistakes a child who has disabilities. Some people would try to hide their child due to “public humiliation” and this was yet another obstacle the children would have to bear. Three of the main topics that this paper will be focusing heavily on are To Kill a Mockingbird, Of Mice and Men, and the infamous Coronavirus pandemic. Although many different portrayals of disabled people have constantly been negative in film, literature, etc., we as a community have seen their basic needs not being met through a global pandemic that would sweep the world off their feet. Throughout history, we can see the change of the definition of “disability” and the different verbiage going along with that. For example, people of different ethnicities, culture, and skin tones were treated as if they were ostracised from society, treated like they had something “wrong” with them. Perspectives constantly switch from a time of unpredictability, loss, and devastation to a time of change, different outlooks, and bettering the future. Whether it be a physical, educational, or mental disability, our society tends to ignore basic resources needed. Three specific themes that are recurring are unpredictability, loss, and devastation and are seen throughout history. Although a majority of the human population has gone through the action of fighting these themes, disabled people have been the biggest victims of impact. 

In the very famous, banned book Of Mice and Men by John Steinbeck, the two main characters are George and Lennie. These two ranch workers are in search of new and better opportunities for jobs. Throughout their journey, Lennie is obsessing over the “perfect life” with George. “Behind him walked his opposite, a huge man, shapeless of face, with large, pale eyes, with wide, sloping shoulders; and he walked heavily, dragging his feet a little, the way a bear drags his paws” (Steinbeck 2). In this quote, we can see how Lennie was described as a literal animal, as some people with disabilities (and people of color) were expressed to be. He was described to have no human features and to have one that comes very close in comparison to almost a zombie. Although he appears to be a fit male, his disability is within and the audience can concur that he has some form of intellectual disability. Early on in the book, we witness an encounter between the two ranch workers and Lennie asked George where they were going. George yelled back and said “So you forgot that awready, did you? I gotta tell you again, do I? Jesus Christ you’re a crazy bastard” (Steinbeck 4). Obviously, Lennie cannot remember or grasp a simple concept, such as where they are headed to and instead of reminding him, George angrily calls Lennie a “bastard” and does not really give him a chance. All his life, Lennie has probably been called inhumane names and derogatory cuts at his own being. Lennie was obviously deprived of a better education where he should have received a tutor and extra help in school, but did not have the right resources. Later on, Lennie is unable to control and/or cannot seem to “correctly” feel how he feels. Although he is a tall, strong man, who wants the best for he and Goerge, he commits murder. He is a lover of soft texture items and while he is clearly upset, Curley’s wife goes up to him for comfort and allows him to play with her hair. The feature of long hair has always been symbolic of femininity and also serenity. Lennie becomes very overstimulated and he does not know his own strength. He shakes her head so hard, it kills her. “Lennie never done it in meanness” (Steinbeck 90). George said this in hopes of saving not only Lennie, but his own reputation as well. After killing Curley’s wife by accident, George was in disbelief that Lennie was capable of killing another human being. The killing of Curley’s wife ultimately led George to kill Lennie, because he was afraid what would happen if others found out. 

In To Kill a Mockingbird, Boo Radley is neighbors with the Finch family, where he seems to hardly be seen. He is consecutively hopping in and out of the picture, when he wants to be seen. Mr. Finch, Atticus, is having a conversation with Scout telling her that basically if she learns to sit back and learn to understand why people are the way they are and to walk a mile in their shoes, her life will be a whole lot less worrisome (Lee 33). A simple lesson we have all been taught could be so important it could save someone from a deep form of loneliness, depression. If someone would have taken the time to understand why Boo is the way he is, then maybe he would have more people to lean on and he would feel more comfortable in his own skin. Based on his tendencies such as hanging out with the younger generation (Scout and Jem), Boo seems to have a more innocent personality than others his age. Another “disability” seen in this book is the color of Tom’s skin and his social placement is used against him under the law. For example, it states that “Maycomb’s Ewells lived behind the town garbage dump in what was once a Negro cabin” (Lee 193-194). This is a prime example of how underprivileged Tom was by the law and society that he does not “deserve” the same, clean, sanitary treatment as those around him. The Ewell family is on the outskirts of towns and on the outskirts within the society.    

Lastly, I think we can all agree that the Coronavirus swept out America and the world as a whole more so than what we were expecting when it first hit. Not only were people with physical disabilities out of reach of basic needs, such as private tutors, rehabilitation centers, and therapists, but money was another component that ran out. Workers ran out of their jobs and this would later lead to a time of uncertainty within their families. During quarantine, women and children were trapped in homes being abused everyday, but had no resources for therapy and they felt as if there was nowhere to go. With the closing of schools across America, the school system became one of uncertainty and unpredictability. Teachers had to relearn how to teach online and they also had to learn to work from home. Students had to learn to be away from friends, teachers, and tutors. The children who were learning online did not receive the education they should have, especially at elementary aged students. Not only was their education missing, but their opportunity to socialize became lost. For younger children, they are at an age where socializing is just as important as going to school and both of these concepts were taken away from them. Many people still suffer the consequences of quarantine due to major health issues that were impacted. People were losing jobs left and right, parents and children were unable to support their families, and health became a dire priority. This virus hit the world like a scene from a movie, children became orphaned, parents became childless, and the world became hopeless. The future held empty promises for many people, but especially those who were impoverished and those who simply did not maintain the same financial status as others. Health care and health insurance would soon be a luxury for most of America and other countries as well. Underlying health factors would also be an important component with the Coronavirus. For example, if a victim has respiratory issues and they become ill with COVID, they will most likely be put on a ventilator.  

Most disabled people are continuously in need of more attention and different forms of resorts. People of all ages, genders, and societies could potentially benefit from different forms of centers. Our society today is trying to combat different judgements against the disabled community, such as certain verbiage (ie. getting rid of the “r” word) and teaching to the younger generation that “disabled” people are actually just abled people who go about life a little bit differently. The disabled community could be due to lack of funding, circumstances, and nature at the end of the day. Many different students may feel a sort of shame that their peers are getting ahead faster and/or a little bit easier in the classroom than they are, but with resources life becomes easier. The right tutors can change a students life upside down, but affording a private tutor may not be an option for most students. However, some colleges offer free sessions with a private tutor who is usually a fellow student. People who may have a physical disability, such as those who have Tetra-Amelia Syndrome may feel as if they do not have the same standards as the peers who are not able to relate. Tetra-Amelia Syndrome is a disorder for those born without any of their limbs. However, with the right support system and those around them pushing them to be the best they can be, they can go on to have families of their own, jobs of their own, and they can even participate in the special olympics. Life for them may not come as easily as it would for someone born with all four limbs, but they are still able to do everyday tasks that everyone else is able to do. Lastly, mental disabilities should be handled with the same amount of care and gentleness as any other disability. A mental disability is a constant battle in your own mind, such as depression and/or anxiety. Getting out of bed each morning may be a struggle, while to an able mind it may just be an expectation, an easy, everyday task. Numerous people each day are deprived of necessary resources that could, at the end of the day, be the reason for successful living. To Kill a Mockingbird, Of Mice and Men, and during the deadly Coronavirus, we are exposed to the lack of aid out there for our society all throughout the past. 

Works Cited:

Lee, Harper. To Kill a Mockingbird. New York. Harper Collins. 2006. Print

Steinbeck, John. Of Mice and Men. New York: Penguin Books. 1937. Print

Major Project – Alex Huber

Word count: 547

For my major project for this course, I wanted to tackle one of the texts we read this semester, Harper Lee’s To Kill a Mockingbird, and one of its most iconic disability-aligned characters, Arthur “Boo” Radley. Throughout the novel, Arthur is portrayed as a phantom hanging over the town of Maycomb, to the point where Scout, Jem, and Dill see him as an inhuman bogeyman. This is further punctuated by the nickname he is referred to as throughout the story: Boo. However, at the end of the story, Arthur is revealed to be a normal person, just like anybody else, and his implied disability (as the nature of his disability is never explicitly named or revealed) does not change that. As part of this project, I wanted to include both depictions of Arthur and show how they mirror each other, as although he is not a monster or bogeyman the rumors and stories are a part of how the people of Maycomb perceive him, especially the children.

At the start of the novel, Scout, Jem, and Dill have never seen Arthur, and as such they can only imagine what he looks like. In the first chapter, Jem describes him as being “about six-and-a-half feet tall,” “[dining] on raw squirrels and any cats he [can] catch,” having “blood-stained” hands, with “a long jagged scar that ran across his face,” and teeth that “were yellow and rotten” (Lee 14).. While I kept this description in mind as much as I could, ultimately I decided for a more abstract approach with the two depictions of Arthur. The Arthur at the bottom of the image is the bogeyman Boo Radley, colored entirely red with the blood staining his body from the animals he supposedly eats and holding the pair of scissors he is said to have stabbed his father with. His eyes are hidden by shadow, aside from the light shining from the one eye not covered by his hair, further pushing the imagery of Boo being a monstrous figure haunting the minds of those in Maycomb.

In contrast, the Arthur at the top of the image represents the Arthur described in the final chapter of the book, when Scout properly sees him for the first time after he saves her and Jem from Bob Ewell. In this description, Scout notes how his “face [is] as white as his hands, but for a shadow on his jutting chin,” how “his cheeks [are] thin to hollowness,” and how “his gray eyes [are] so colorless [she] [thinks] he [is] blind” (Lee 310). Once again, while I kept this description in mind as much as possible with my piece, I took an abstract approach and instead colored the entire Arthur a pale grey, depicting him smiling gently at the viewer with clasped hands. This depiction of Arthur, the true Arthur, is far more gentle than legends would have one believe, and while he does ultimately kill Bob Ewell, he only does so to protect the children he considered his friends.

Arthur Radley is far from the only example of a disability-aligned character in literature with a dramatically different reality from his reputation, but he is perhaps one of the most iconic, and certainly he is one of the most memorable characters from Lee’s novel.

Citations:

Lee, Harper. To Kill a Mockingbird. HarperCollins, 1960.

I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work. Alex Huber.

Major Project – Melissa Madsen, Kelly Brown, Lisa Gisselquist, and Rebecca Visger – The Impact of Therapy

While the four members of this group project all enjoyed reading The Secret Garden by Frances Hodgson Burnett, we argue that there was more potential for this book with regards to its disability themes. The Secret Garden focuses primarily on physical disability, with three of its main characters – Mary, Colin, and Mister Craven – being disability aligned, or in the case of Mister Craven, explicitly disabled. These representations become problematic, however, as the book becomes a cure narrative for Colin, and to a lesser extent, Mary. The Secret Garden also begins to engage with mental health as well. Chapter XXVII “In the Garden” opens with the narrator discussing human discovery, and how “In the last century more amazing things were found out than in any century before” (Burnett). Assuming the setting of the book is contemporary with its publishing date of 1911, the narrator is referring to the discoveries of the 19th century. One of these discoveries is that “thoughts—just mere thoughts—are as powerful as electric batteries—as good for one as sunlight is, or as bad for one as poison” (Burnett). The book does not delve much further than this binary of “good and bad thoughts” and that good thoughts make a “healthy mind.” Burnett was limited by writing in the dawn of the mental health studies, which had only really begun in earnest just three years earlier in 1908 (Mandell). With the benefit of over 100 years’ more research into the mental health field at our disposal, we wish with this project to expand upon themes of mental health already present in The Secret Garden. Through a triad of short creative stories, we examine how the depictions of the mental states of the characters Mary, Colin, and Mister Craven, if written in the modern era in a modern setting, would differ from their original depictions.

Our creative writings are in the format of therapist’s forms and notes describing the interactions and “professional” assessments of two mental health professionals concerning the characters of Mary, Colin, and Mister Craven. This format not only reflects a more experimental approach to form more common in the 21st century than the early 20th, but also how in the 21st century mental health is a specialized field of study and practice, carried out by licensed professionals rather than a general doctor or going wholly unacknowledged. Research for these pieces was carried out on an individual basis by each author, with advice on starting points provided by Melissa’s father, CDR Clifford M. Madsen. Research mainly consisted of investigating potential diagnoses of these characters and how they may be accurately and sensitively represented and written. Melissa’s piece focuses on Mary, addressing the trauma Mary would have felt and experienced after losing both her parents and the servants who raised her to cholera that goes unacknowledged in the book. It also explores the implications to Mary’s character if she had had an adult who understood and supported her as soon as she had arrived at the manor. Kelly’s scenario focuses on the implied mental difficulties Colin experiences that, in the original novel, like his physical condition, are miraculously cured by the garden. Lisa’s work contemplates how a therapist might have reacted to Archibald if he had been able to seek out professional help rather than isolating himself after his wife’s death. (Rebecca is the author of this write-up.)

The goal of this project was not to disparage Burnett’s approach to mental health in The Secret Garden; her inclusion of mental health at all proves she kept up to date with the findings of her time. She was writing from the metaphorical cutting edge, and we wanted to revisit her characters and vision from our new edge. These creative writings reveal not only how far the field of mental health has come since 1911 through acknowledging the toll these characters’ collective life experiences would have taken on their psyches, but also that they would have benefited from more tangible help than the moor air or the secret garden could supply. In writing all that was known about at the time, Burnett revealed how much was left to be explored, and no doubt our work in the future would be viewed similarly. The format of our works and writing from therapist’s perspectives is indicative of, for better and for worse, the heavy emphasis on medicalization mental health receives in our time. Burnett’s work was progressive for her time, and maybe ours is too, but progress will keep going, and our writing will remain right where it is.

~^*^~

From the Office of Dr. Janice Gardner

Patient: Mary Lennox
Age: 10
Treated For: Childhood Trauma
Office: At-Home Visits
Alternate Address: Misselthwaite Manor, The Moor, England

Entry 1
I received a call from Mrs. Medlock last night. I was surprised that her focus was not on my usual patient, but on a girl who moved into the manor a few weeks ago. Apparently, Craven’s brother adopted his niece, Miss Mary Lennox, after an undisclosed event related to her previous home. While Mary’s physical condition had slightly improved since she arrived at the manor, she has developed a disagreeable disposition and a habit of acting out of line, which prompted her maid, Miss Martha Sowerby, to ask the housemistress to call me. Because of the girl’s history, Martha was afraid that the situation would deteriorate without my intervention, so Mrs. Medlock urged me to come to the manor for an introductory visit as soon as possible. I have learned to always trust the intuition of a Sowerby, so I accepted the invitation.

I arrived at the manor this morning to find a stubborn Miss Lennox sitting at the window with her arms crossed. The girl looked thin for her age, and glared at me when I walked into the room. We exchanged stilted introductions, then Mary promptly informed me that she does not want a governess. I promptly informed her that I am not a governess, but a therapist who was called to help her. Mary started to yell at both Martha and I about how she wasn’t crazy and that she didn’t need a therapist! She didn’t need help! She didn’t need anyone!

It took about ten minutes for Martha and I to calm her down. Once the dust settled, I asked Mary why she said she wasn’t crazy. She looked to Martha, who gave her an encouraging nod. Mary proceeded to tell me about what happened: how she heard someone crying in the night, how it became louder in the corridor, how Mrs. Medlock stopped her from going any further…

“I tried to ask Mrs. Medlock what was going on. I tried to tell her about the crying, but she said it wasn’t real. But there was someone crying – there was – there was!”

When I told her I believed her, Mary stared at me in shock; she hadn’t expected that answer. I proceeded to tell her who I am and what I do for a living – help people heal from or deal with mental wounds, trauma, and disorders. I reassured Mary that she can tell me as much or as little as she wants; I am only here to figure out if there is something deeper going on and help her as much as I can if that is the case. However, I made it clear that I would not pry or continue if Mary did not want my help. She looked over to Martha again, who gave her another encouraging nod. She accepted, and we agreed that I would come back to the manor in two days’ time for a proper appointment.

Judging by the minimal information I received from Mrs. Medlock and my meeting with Mary earlier today, Mary may be dealing with unresolved childhood trauma. She’s showing many of the indicators in her demanding and possessive behavior, the way she carries herself, and how she interacts with others. I will not know for certain until I talk with her at our first appointment, however, if this is the case, I may have a technique that can help her.

Entry 2
I came into Mary’s room today to find her waiting for me next to the fireplace. She still seemed hesitant, but more comfortable than before in speaking with me, so we wasted no time and immediately got to work. I started the session by asking her various questions about her life. What is her life like at the manor? Does she have any friends? What is her relationship like with Mr. Craven and the other servants?

Mary hesitated at first, but once we started talking about Martha and the gardens, her eyes lit up and her entire demeanor changed. She started talking about the manor as a positive experience so far and how her favorite activity is walking around the gardens and enjoying the moor air, something that she was not able to do back in India.

Using that answer as a segway, with her permission, I then moved on to asking questions about her past. What is her relationship with her parents? Did she previously live in India? How did she like living there? And what happened in her previous home that caused her to come to the manor?

The answer is not a pretty one. Mary used to live on her parents’ estate in India. As soon as Mary was born, Mary’s mother entrusted her care to an Ayah, an Indian nanny, who kept Mary out of her parents’ sight as much as possible and catered to her every need. However, a few months ago, most of her family’s household fell victim to an Indian strain of cholera, including her parents, her Ayah, and most of the servants. The few who survived forgot about Mary and left her alone in the estate. She was found days later by a group of officers. While she spoke of her experiences, Mary’s face shifted from impartial to fondness to discomfort to something unreadable. The rest of her body became more and more tense as her story went on. Despite her independence, her experiences have affected her more than she’s willing to admit.

Not wanting to get too deep into processing yet, I guided Mary to start talking about our plan of action. I introduced her to EMDR and how the technique allows her brain and body to process trauma by giving her eyes two moving dots to focus on while she reflects on her experience. We discussed at length what memories Mary wanted to target and in which order, and agreed that we would start with her early childhood next session.

In the meantime, I guided Mary in establishing her safe place so that she had a tool to use in between sessions to handle any annoyance or surfacing trauma brought on by the processing. I asked her to think of a place where she feels safe and, if she felt comfortable, to describe it to me. She chose a peaceful, quiet, secluded garden with tall walls made of ivy and many different flowers growing around the area, all connected via a cobblestone pathway. The rose bushes grow the tallest, almost rivaling the ancient trees that provide shelter to birds native to the moor, most prominently red-breasted robins. A wooden door is the only way in or out, and is hidden from the outside world by a wall of ivy that covers the doorway, making it blend in with the rest of the wall. Mary keeps the only key to the door on her person, allowing her to come and go whenever she pleases and unlock the door whenever she likes.

“…I can unlock the door whenever I like…”

Mary paused after that last sentence, as if she was pondering something. She put her hand in her pocket. I could see the realization slowly dawn on her face as the seconds passed. I asked her if she was alright, but she only replied with a simple yes. I decided to not push her any further, not wanting her to lose the progress she’d made so far. I asked her to think of a word that best describes this place in her mind, a word that would trigger her recollection of this place and how good she felt in this moment. Her response: garden.

Entry 3
This house continues to surprise me.

Mary has made excellent progress on processing her trauma. She has successfully processed much of her early childhood; the only events left are her abandonment following the cholera outbreak and her journey to the manor. It has not been an easy road, however. Mary has grown comfortable enough to let me see her most vulnerable side. In our last session alone, she expressed how she felt betrayed by the servants who left her, how she felt angry at her parents for not spending time with her, how she felt so alone in the hut after everyone had left with only a snake to keep her company. Some sessions have ended with warm feelings and closure; others have ended in tears and fluffy blankets. I was informed that this same effect has spread into the rest of Mary’s life; some days she feels joyful while others she just wants to curl up on her bed and cry. Mary has been utilizing her calm place in those moments to help her, and I can see the positive effects of our treatment finally shining through.

Mary and Martha have become close friends over the past few weeks. Mary has become comfortable with Martha helping her through her troubles; sometimes she specifically calls for Martha to be in the room during our session so she can provide moral support. I am also told that Mary has made friends with one of the gardeners and Martha’s brother, Dickon. This is wonderful news; Mary finally has a stable social circle!

At the same time, Mary’s physique has also greatly improved since I first met her. She spends every day she can out in the gardens, building her strength and developing a healthy appetite. She now has so much energy that her positive attitude almost becomes infectious. In our last session, she proudly informed me that she can now do one hundred skips and is aiming for two hundred.

Mary’s vast improvement is wonderful, of course, but it makes me wonder – what exactly is happening in that garden? If there is some sort of secret trick to all of this, Mary is certainly benefitting from these positive effects. And if Mary has shown this much improvement in so little time, is it possible for her to inspire another to do the same?

…I should introduce her to Colin.

~^*^~

From the Office of Dr. Janice Gardner

Patient Name: Colin Craven
Age: 10
Treated For: Conversion Disorder
Office: At-Home Visits
Alt. Address: Misselthwaite Manor, The Moor, England

Entry 1
Progress with the patient has been, regrettably, extremely lackluster. Colin is a bright young boy, but he refuses to even consider what he is capable of because of his mental disability. It truly holds him back, in more ways than one. He claims he will not live to adulthood, and worse, that everyone would be happier if he died. Time and time again I have encouraged him to rethink his fatalistic mindset, but to no avail. Colin simply sees no reason to improve, and should this behavior go on, I will have to end our sessions indefinitely. It would absolutely break my heart, but Craven needs to understand that I can only do so much for an unwilling client.

When I compare Colin’s treatment, or lack thereof, to that of Miss Mary Lennox, I notice a striking amount of similarities between the two. Both have extensive trauma that originates from the hostile environment they were raised in, but unlike Colin, Mary has gradually learned how to open up about what she went through. Colin has not yet found a sense of trust in me, because in his eyes, I am just another adult he can give orders to. That is why I wholeheartedly believe Mary, a child his age, can help. Normally I would never ask patients to get involved in cases besides their own, but I will make an exception, seeing as Colin and Mary live under the same roof. I have no doubt that, if nothing else, they are at least acquainted with one another. I plan to ask Mary for her assistance during our next meeting, and if she takes interest, I will lead her to Colin’s room. From there I will decide whether or not to continue holding group sessions based on how responsive Colin is, but let it be known that this is my last resort. In terms of outcome, I expect the worst, but hope for the best.

Entry 2
Prior to today’s meeting, I have kept my assumptions on the Misselthwaite staff to a minimum. How they interact with Colin, and therefore Mary, is entirely their call, and I am in no position to criticize or reprimand them. Despite that, had I known they were withholding Colin’s very existence from Mary, I would have intervened sooner. No matter how unbearable he is, Colin still deserves respect from the servants. It is unfair, and frankly insulting, to not give him the decency of acknowledgement. Hence why, upon seeing Mary’s confused expression, I realized she’d never heard his name before. I knew what needed to be done from there.

When the two children made eye contact for the first time, they were speechless. Quite literally, in fact: for a good while they just gazed at one another, in complete and utter silence. Finally, Mrs. Medlock broke the tension, asking what I had brought Mary here for. I explained to her what I had planned, and although reluctant, she conceded and left the room. We began with introductions and small talk, and once those fell flat, I prompted Mary to tell Colin about her calm place. That piqued his curiosity, but when he asked if he could visit, his smile faded. “Never mind.” He uttered solemnly. In all my time knowing Colin, never before had he seemed so excited to do anything besides wallow in lament. It was as though listening to Mary helped him forget about his disability, if only briefly. Our session ended shortly after, but not before Colin asked Mary to come back later without me. I can only imagine he wants to hear more about the garden.

Overall, I would call this experiment a success, but that does not excuse the circumstances surrounding it. It is no wonder Colin feels like a burden when everyone in Misselthwaite treats him as such, and the next time I see Craven, I intend to give him a piece of my mind.

Entry 3
Approximately three weeks have passed since I implemented group sessions, and the patient is showing various signs of growth. For starters, we moved our meeting location from his bedroom to the main corridor, and he no longer needs Martha’s help walking between rooms. Colin also has grown closer with Mary, as supposedly he does not “summon” her like he does with the servants. I have reason to believe she is his first real friend, and that is something the grown-ups in his life could never be.

Colin’s bond with Mary seems to have affected his trust in me, for I am the one who brought the two together. He is now a lot more honest during our one-on-one visits, and just recently he began opening up about his late mother. Because it is a very serious topic, I have sworn to keep everything confidential, and Colin may stop at any point if he starts feeling uncomfortable or upset. From what he has told me so far, his mother died shortly after giving birth to him. His father, Craven’s brother, never truly recovered from it, and has been neglecting Colin ever since. “I look too much like her…” Colin said, and did not elaborate any further.

The fact that Colin now feels safe enough to confide in both myself and Mary is a step in the right direction, and at the rate we are currently, I expect he will continue improving.

Entry 4
This will be my last entry for the time being, but that is not necessarily bad. Just the opposite: Colin is finally understanding how much potential he has. Of course, none of this could’ve happened without Mary; she has comforted him beyond our group meetings, and even introduced him to Dickon. I am very grateful to her, as well as Martha, who eventually realized how crudely the servants of Misselthwaite were treating Colin. “What do you suggest we do when Colin is upset?” She privately asked me after a visit. My advice was to not get frustrated: “Give him space to breathe, help him feel better once he calms down, and let him vent out any lingering emotions rather than bottling them up.” She shared my advice with the rest of the household, and by the time I returned for my next session, the hostility of the environment seemed to have declined. As for Colin’s health, he is no longer a pale and sickly boy who hates being looked at. He has managed to step outside the manor at least once or twice, and I think spending time outdoors will do him some good, like it did with Mary. He will likely need more time to learn how to properly walk, but I have recommended a physical therapist for him to try in the meantime.
Colin and I will be meeting on a less frequent basis from this point onward, but I still intend to check up on him at least once a month. Recovery does not happen overnight; for some people it can take years to properly heal, as is the case with Colin’s father. Still, Colin has come a long way since we first met, and I could not be prouder.

…Speaking of Colin’s father, Craven told me his brother is seeing a therapist of his own.

~^*^~

Year: 2021
Patient: Archibald Craven
Treated for: Depression
Psychiatrist: Dr. Peggy Blackwood

April:
I met with Archibald Craven again today. Since his brother recommended him to me for treatment a year ago, we have not made much progress. He continues to struggle with depressive episodes, often leaving home for months on end to escape the reminders of his dead wife and his sick son. Any mention of his son or the garden is likely to trigger a new episode. He has been largely resistant to any attempts to relieve his depression.

During our session today, a strange event occurred. The appointment began as normal. He has been in one of the deepest depressive episodes I have ever seen him in for the last week. Dr. Craven contacted me, concerned for his brother’s safety, and we scheduled this emergency appointment. Archibald was very despondent and barely receptive to talking with me or to my suggestions.
With forward progress halted, I changed techniques and started him on a processing treatment called EMDR. It is typically used with PTSD patients to help them deal with their trauma, but I chose to try it with Archibald since normal methods and medications weren’t working. The goal of the exercise was to keep his eyes occupied with something visual on a screen while his mind had a chance to wander and process ­­the trauma of his wife’s death and the worry for his son’s survival in the ensuing months. I instructed him to pick a particular event to focus on.

At the beginning, he was resistant, as he is to most treatments. Then, he almost seemed to be drawn into the process, his eyes focusing on the two dots bouncing around on the screen as his mind wandered. I heard him mumble something about “a bubbling brook” as his face started to soften slightly. It wasn’t a smile, but it was as close to one as I had ever seen. His shoulders relaxed almost imperceptibly. As our session ended, I tried to ask him about the experience, but he just gave me a sad, half-smile and left the room.
I notified my assistant to schedule another appointment soon. Though Archibald was difficult to pin down with all his travels, I didn’t want this development to be in vain.

June:
Since the breakthrough two months ago, Archibald has continued to progress, with only small setbacks. He has begun attempting the various exercises I put before him. His mental health has started to improve at a slow pace but a still moving pace. He has even begun to contemplate returning home, which is unusual. The last time he returned home, it was only because his brother needed him for a few days and Archibald left as soon as he could. He also admitted that he has stopped seeing his wife as often in every window and face that he sees.

As our session started, I started him on EMDR again. This time, his face started out gentle. After a few minutes, his head started to tilt to one side as if he was listening to a faint voice.

Suddenly, he sprang to his feet.

“Lilias! Where are you?”

Naturally, I was concerned. Hearing voices is a step in the wrong direction. This was a setback rather than the improvement I had been hoping for. Then again, he had never mentioned his wife’s name. He stood there listening for several long moments before speaking again. I waited, not wanting to interrupt his trance-like state lest I injure him. He appeared as one sleepwalking.

“In the garden! But the door is locked and the key is buried deep.”

Perhaps this was a good event after all. He had never mentioned the garden before. I only knew about it from Dr. Craven. Archibald appeared to recover from his dreamlike state and looked around, startled to see where he was. He quickly picked up his briefcase and began searching through it. Pulling out a piece of paper, he read it before returning it to its previous resting place. He grabbed his coat and briefcase, told me farewell, and left.

I must remember to follow up with Dr. Craven shortly. Leaving Archibald alone in such a vulnerable state was unadvisable.

July:
I received the shock of my lifetime today. Since our last visit, I had not seen or heard from Archibald Craven. Dr. Craven had alerted me not to be concerned, but I was still apprehensive about Archibald’s mental state. I had reached out to him on multiple occasions but there was no response.

Today, he walked through the door, as tall as I have ever seen him stand with one arm wrapped around a girl and one around a boy. The boy looked too much like his father for me not to make the connection. However, the boy was healthy. I had been told that he was in imminent danger of death.

A smile burst from Archibald’s face as he shook my hand and thanked me for everything I had done. He flooded me with information about the miraculous recovery of his boy and the wonderful garden. He promised to return in the short future to check in. I watched in a daze as he left with his small family.

I would follow up with him shortly. This recovery was impressive, but I knew that only careful work over the next couple of months and years would ensure its permanence. I would also have to check out this magical garden. If it had cured all three of them, perhaps it could help others.

Works Cited

Burnett, Frances Hodgson. The Secret Garden. Project Gutenberg, 1994, https://www.gutenberg.org/files/113/113-h/113-h.htm, Accessed 16 Nov 2021.

CDR Clifford M. Madsen USN MC Sports Medicine Physician. Personal Interview. 4 Nov. 2021.

“Conversion Disorder: What Causes It and How Is It Treated?” WebMD, https://www.webmd.com/mental-health/what-is-conversion-disorder. Accessed 15 Nov. 2021.

Dr. Mandell. “Origins Of Mental Health | Johns Hopkins Bloomberg School Of Public Health” Johns Hopkins Bloomberg School Of Public Health, 1995, https://publichealth.jhu.edu/departments/mental-health/about/origins-of-mental-health.

Dr. Amira Niori. Personal Interview. 12 Nov. 2021.

What Is EMDR? – EMDR Institute – EYE MOVEMENT DESENSITIZATION AND REPROCESSING THERAPY. https://www.emdr.com/what-is-emdr/. Accessed 16 Nov. 2021.

Word Count: 4620

We hereby declare upon our word of honor that we have neither given nor received unauthorized help on this work.
-Melissa Madsen, Kelly Brown, Lisa Gisselquist, Rebecca Visger

Katy Rose Price’s Major Paper

Racialized Notions of Ability in Special Education

Race and disability are assumed to be fixed and relatively obvious but rather are categories that are socially constructed and constantly contested and redefined. Historically, both have operated to define, oppress, and segregate. In 1972, legislation was introduced to Congress regarding the education of children with disabilities and in 1975, Congress enacted Public Law 94-142, then called The Education for All Handicapped Children Act of 1975. The passage of this act, now known as the Individuals with Disabilities Education Act (IDEA), guaranteed students with disabilities a free and appropriate education in the least restrictive environment (Ferri and Connor 454). Despite this, many students with disabilities are placed in educational settings that distance them from their non-disabled peers. This is further confounded by the overrepresentation of minority students in special education, with Black students being overrepresented in nine of thirteen disability categories. Furthermore, Black students are more likely than their white peers to be placed in exceedingly restrictive and exclusionary education settings (Ferri and Connor 454). In education as a whole, but particularly the field of “special” education, which has frequently been recognized as a multifaceted and fraught area, race and class influences can significantly shape students’ experiences (Gillborn). Special education allows the larger educational system and broader society to function in the ways they do, in addition to upholding and reinforcing the social and cultural norms of said society. Special education has traditionally escaped critical scrutiny because it is understood to be synonymous with “benevolent humanitarianism” (Tomlinson, 2014: 16)—one that conceals and normalizes practices that impact different social groups in dissimilar ways. In this paper, I argue that, since the establishment of special education, the discourses of ableism and racism have become conflated with one another, thereby permitting forms of racial segregation under the façade of “disability.”

Until the implementation of IDEA in the mid-1970s, many students with disabilities were barred from any education based on the discretion of schools that could claim an inability to accommodate such students (Ferri and Connor 457). Prior to this, the first half of the 20th century saw the increasing number of separate facilities for children deemed as “slow” or “r*******,” with it being no coincidence that the U.S. eugenics movement was occurring simultaneously (Ferri and Connor 457). During the 1950s, there was a marked rise in standardized testing that operated to help institute a set of inflexible norms surrounding academic ability based largely on white, middle-class American understandings, expectations, and principles. This designated students as “normal” or “average,” while those who deviated from those labels were separated (Ferri and Connor, 457). Furthermore, the process of labeling students progressively increased during the 1960s with the advent of the term learning disability (LD), as well as the escalation of the usage of the term emotional disturbance (ED) in the field of education (Ferri and Connor 458). According to Christine Sleeter (2010), the category “learning disabilities” arose as a calculated move to shelter the children of white middle-class families from possible downward mobility through poor school achievement. In this way, this category can be seen as part of overt attempts to protect the scholastic privilege of white middle-class America who were unable to meet boosted academic expectancies of post-Sputnik era curriculum alteration. Additionally, this allowed families of white, middle-class children an alternate and less stigmatizing avenue to justify their children’s difficulties and to gain access to special services (Ferri and Connor 458).

Throughout history, the perception of disability continues to be elucidated as the “natural site of abnormality and fearsome difference—the ‘abject’” (Erevelles 83). Many scholars and theorists have traditionally thought of disability as a biological category, one that is founded in the “medical language of symptoms and diagnostic categories” (Linton 8). However, disability studies scholars have imagined disability as a socially constructed category, one that “derives meaning and social (in)significance from the historical, cultural, political, and economic structures that frame social life” (Erevelles 85). The social model of disability also considers that even the most marked so-called “impairments” only become disabling when encountered with socially constructed problems and postulations (Gillborn). As such, disability brings to light the intricacies and assumptions that are intertwined in our social hierarchy and social categories—thus, lending to the idea that disability “can be theorized as constitutive of most social differences, including race” (Erevelles 85). Implicit in the construction of disability is the compulsory able-bodiedness that asserts that what is both desirable and moral is essentially heteronormative and non-disabled (McRuer 2). As Erevelles argues, “In these contexts disability is required to be simultaneously hypervisible and yet invisible in the medicolegal measurement of social and moral worth, serving as the yardstick that resurrects social difference only to hasten its instantaneous disappearance” (82). Thusly, compulsory able-bodiedness is often employed to separate conventional society from those who are considered threatening outcasts (Erevelles, 89).

In conjunction with compulsory able-bodiedness, it is necessary to understand the implications of Foucault’s theory of bio-power. Bio-power is thought of as the “explosion of numerous and diverse techniques for achieving the subjugations of bodies and the control of populations” (Erevelles 84). One of these techniques is the use of the medical model of disability to vindicate the continued segregation and removal of disabled people to alternative schools, special education classrooms, and segregated residential institutions (Erevelles 84). This exemplifies how disabled people are constructed to be unworthy, undesirable, and needing to be removed from the gaze of society. The construction of inferiority and mental deficiency contains entrenched and entangled histories of ableism and racism that function to place Black and minority students in segregated special education classrooms, as they are perceived as dangers to the “normal” practices of schooling and to the general education population (Erevelles 92).

In order to fully comprehend the confluence of race and disability in special education, first one must consider the status of both race and disability as socially constructed concepts by a society that values and aggrandizes whiteness. As Erevelles argues, “both disability/impairment and race are neither merely biological nor wholly discursive but rather are historical materialist constructs imbricated within the exploitative conditions of transnational capitalism” (87). This elucidates the concept that race and disability should be understood principally as interactive social constructs, not distinct biological markers as they are often thought to be. The U.S. rhetoric of race and disability are intertwined and interdependent and are employed to validate both exclusion and marginalization (Ferri and Connor 455).

When looking at the U.S. educational system, perhaps the most infamous ruling is Brown v. Board of Education of Topeka (1954), determining that racial segregation in schools is unconstitutional. Brown paved the way for the passage of IDEA in 1975, establishing legal precedence and many of the same principles seen in IDEA. However, this ruling was implemented in a society “with a dominant ideology that racializes notions of ability and merit” (Ferri and Connor 455). As such, systems of power that rely on the maintenance of said dominant ideology shifted divisions of students based on racial “difference” to divisions according to “disability,” as it became more accepted. Disability has become a more socially accepted, perhaps even normalized, sort of marginalization of students of color. While IDEA requires that students be placed in the “least restrictive environment” (LRE), this can often not be the case. Though IDEA has been greatly successful in affording students with disabilities access to public and free education, many students, especially students of color, have been placed in more, rather than less, restrictive placements. As a result, some have called LRE a “loophole” that has aided in the establishment of two largely separate and unequal education systems—general education and special education (Ferri and Connor 456). There are disproportionate numbers of students of color, particularly Black and Latinx, who are identified as disabled and placed in highly segregated settings. For example, Black males are more than twice as likely as their white peers to be labeled mentally disabled in thirty-eight states, emotionally disturbed in twenty-nine states, and learning disabled in eight states (Parrish). When given these three labels, students of color are more likely to be removed from general education classrooms (Ferri and Connor 458). Parrish determined that white students generally are “only placed in more restrictive self-contained classes when they need intensive services. Students of color, however, may be more likely to be placed in the restrictive settings whether they require intensive services or not” (26). Furthermore, research suggests that the amount of time a disabled student is placed in their general education classroom is highly correlated to their race (Ferri and Connor 459). Above all, this exemplifies how intensely racialized notions of ability are engrained in our culture and society. They are so deeply entrenched that the segregation of disabled students has also meant segregating students of color. The label of “disabled” was and is employed to resegregate classrooms along class and race lines after the passage of Brown.

In the late 1980s and the early 1990s, advocates for disability rights began to lobby harder for more inclusive placements for all students with disabilities (Ferris and Connor 460). Their efforts resulted in the reauthorization of IDEA in 1997 to what it is today. They further argued that exclusionary schooling practices are indicative of larger societal patterns that continue to struggle against the increased inclusion of people with disabilities in schools and society (Ferris and Connor 460). The public reaction to inclusion for people and students with disabilities was somewhat similar to the reaction to school desegregation, as it was met with strong opposition. For instance, Albert Shanker, the former president of the American Federation of Teachers, declared that inclusion was “a recipe for educational disaster” (Ferris and Connor 460). As a result of pushback to inclusion in school and the widespread belief that implementing inclusion in schools across the country would be unwise, it was argued that a more gradual approach was required. This argument failed to take into account that twenty years had elapsed between the passage of IDEA and any serious attempts to facilitate full inclusion of students with disabilities (Ferris and Connor 466). The approach of gradualism, the same approach taken with racial integration in schools, has been shown, both with inclusion and integration, as possibly being more damaging in the long run, as they result in backlash, resegregation, and little to no real progress. The decision to proceed gradually with inclusion shows the lack of commitment to it and the little value placed on students with disabilities, as many school districts continue to exhibit apathy towards students with disabilities in general education classrooms (Ferri and Connor 467).

Special education, despite being created to meet the needs of diverse learners, has been used to produce and perpetuate the marginalization of individuals founded on the interrelated discourses of race and ability. Individuals who have been deemed undesirable as a function of their race or disability or confluence of both have been designated as the “abject,” as the “other.” These designations are maintained by the dominant groups or ideologies in our larger society which are at least white, able-bodied, heterosexual, and middle to upper class. The dominant group retains and establishes its power over disabled people and people of color (who are outside of the dominant group) by labeling them as unambiguously inferior. These perceptions are deeply entrenched in oppressive legislation, educational practices, and practically every system that has been built for and by the dominant group. Schools uphold and reinforce these dominant beliefs and, as such, are instances of racism and ableism in practice.

As is always the question: where can we go from here? Ferri and Connor conclude that “until the population becomes committed to sharing power on a more equal basis, true diversity within our democracy can only remain an ideal out of reach” (471). While this may be true, there are practices and strategies that can be implemented to help students already in the educational system and those that will enter before we have reached substantial change. Due to the conflation of disability with race and class indicators, some disability studies scholars question the practice of labeling students at all. They argue that it is not necessary to deliver remedial instructional services in segregated settings. In place of these harmful practices, they promote inclusive education that is grounded in constructivist and differentiated instruction, as well as universal design (Reid and Knight 21). In creating an educational system that values and respects each and every one of its students, we must commit to anti-racism, anti-oppression, and a better future for people with disabilities.

Works Cited

Blanchett, Wanda J. “Disproportionate Representation of African American Students in Special Education: Acknowledging the Role of White Privilege and Racism.” Educational Researcher, vol. 35, no. 6, 2006, pp. 24–28. Crossref, doi:10.3102/0013189×035006024.

Erevelles, Nirmala. “Crippin’ Jim Crow: Disability, Dis-Location, and the School-to-Prison Pipeline.” Disability Incarcerated: Imprisonment and Disability in the United States and Canada, edited by Liat Ben-Moshe et al., 2014th ed., Palgrave Macmillan, 2014, pp. 81–99.

Ferri, Beth A., and David J. Connor. “Tools of Exclusion: Race, Disability, and (Re)Segregation Education.” Teachers College Record, vo. 107, no. 3, 2005, pp. 453-74, doi:10.1111/j.1467-9620.2005.00483.x.

Gillborn, David. “Intersectionality, Critical Race Theory, and the Primacy of Racism.” Qualitative Inquiry, vol. 21, no. 3, 2015, pp. 277–87. Crossref, doi:10.1177/1077800414557827.

Linton, Simi. (1998). Claiming Disability. New York: New York University Press.

McRuer, Robert. 2006. Crip Theory: Cultural Signs of Queerness and Disability. New York: New York University Press.

Parrish, Thomas. (2002). “Racial Disparities in the Identification, Funding, and Provision of Special Education.” In D.J. Losen & G. Orfield (Eds.), Racial Inequality in Special Education (pp. 15-37). Cambridge, MA: Harvard Education Press.

Reid, D. Kim, and Michelle G. Knight. “Disability Justifies Exclusion of Minority Students: A Critical History Grounded in Disability Studies.” Educational Researcher, vol. 35, no. 6, 2006, pp. 18–23. Crossref, doi:10.3102/0013189×035006018.

Sleeter, Christine. “Why Is There Learning Disabilities? A Critical Analysis of the Birth of the Field in Its Social Context.” Disability Studies Quarterly, vol. 30, no. 2, 2010. Crossref, doi:10.18061/dsq.v30i2.1261.

 Tomlinson, Sally. The Politics of Race, Class and Special Education: The Selected Works of Sally Tomlinson (World Library of Educationalists). 1st ed., Routledge, 2014.

Word Count: 2088

On my word of honor, I have neither given nor received any unauthorized help on this assignment.

Terrencia Johnson, Miranda Colbert, and Megan Hofmann’s Major Project – Disabled vs. Able-Bodied Gameboard

(Word Count: 525)

For our major project we constructed an image that showcases the unfair advantages abled-bodied people have over a person with disabilities. There are two players in the board game. One being an able-bodied person and the other with disabilities. Although both players are starting the game off at the same place, the path to “win” is not the same. The curvy path a person with disabilities has been much different from the straight path an able-bodied person has. At first glance you can see that it is unfair and not equal. This is the reality for people with disabilities all over the world. On each game square there are different elements that describe issues the player must go through in life. For the disabled person, their squares are more difficult. For example, one square says, “Not every place is accessible.” This connects to Good Kings Bad Kings when Yessenia “Yessie” Lopez had to get help from Pedro for her to use the bathroom. To Pedro, his apartment was accessible to him, but for someone in a wheelchair it was not accessible.  Another square says, “People obsess over the disability rather than the heart.” This connects to the Weise poem when the speaker was going to have intercourse with someone else, but the other person was more interested in the prosthetic leg. This ruined the speaker’s mood and made her rather be anywhere else than in this room with this person who is obsessing over her leg. In addition, another square has the single word, “inferior” displayed in it. This label can be interpreted in multiple ways, however, in this specific case the board game relates the label back to the concept that people with disabilities are often viewed as inferior, resulting in non-disabled individuals praising small, everyday tasks completed by the individual who has the disability. This exact concept is clearly portrayed in John Lee Clark’s poem, Deaf Blind: Three Squared Cinquain. In Lee’s poem, the poetic speaker exhibits frustration at the fact that because he/she is Deaf and blind, non-disabled individuals become astonished when they see the disabled person accomplishing every day, mundane tasks such as walking from one destination to the next. Finally, the last example is the labeled box that says, “forgotten about.” Like inferior, this label can be explained in a variety of ways concerning people with disabilities, but for the purpose of this project the label is related to the capitalist workforce and how disabled persons are oftentimes cast aside. The concept of disabled individuals being forgotten about in relation to the workforce is clearly depicted in Marta Russell and Ravi Malholtra’s theory article, Capitalism and the Disability Rights Movement. A quote from the text states, “Without job accommodations to meet their [disabled] impairments, [disabled individuals] were—less “fit” to do the tasks required of factory workers and were increasingly excluded from paid employment” (3). As a result of being disabled, some individuals face discrimination regarding the workforce and employment opportunities. In conclusion, this board game highlights only a few examples of how disabled individuals face more discrimination and challenges than their able-bodied peers on the “path of life.” 

Work Cited

Clark, John Lee. “Deaf Blind: Three Squared Cinquain by John Lee Clark.” A Cup of Poetry, 15 Apr. 2013, https://acupofpoetry.tumblr.com/post/48052546867/deaf-blind-three-squared-cinquain-by-john-lee

Nussbaum, Susan. Good Kings Bad Kings : A Novel, Algonquin Books of Chapel Hill, 2013. ProQuest Ebook Centralhttps://ebookcentral.proquest.com/lib/umw/detail.action?docID=3419359

Ravi Malholtra, Marta Russell. “Introduction’ to Capitalism and Disability .” Dokumen.pub, 2019, https://dokumen.pub/strategic-innovative-marketing-and-tourism-7th-icsimat-athenian-riviera-greece-2018-1st-ed-978-3-030-12452-6978-3-030-12453-3.html

Weise, Jillian. “Nondisabled Demands.” PDF on dis/lit course website. Fall 2021.

“We Pledge” – Terrencia Johnson, Miranda Colbert, and Megan Hofmann

Emily Malone’s Major Project

Transcript from art piece:

My heart was absolutely pounding behind those double doors into the chapel. What am I saying, it’s still pounding even now, but that anticipation before I took those steps down the aisle, unforgettable. I’ve been waiting for this moment for years, ever since I met him. Well, even when I was a kid I used to dream of my wedding day, the way most little girls do. The fancy dress, the bridal chorus, all that attention from your closest friends and relatives. It always seemed like a dream. 

The approach of my wedding did lead to some odd comments. Mainly about my appearance, which in what world is that appropriate? I’m sure people don’t even realize how rude they are being when they ask things like that. Most of the questions were along the lines of, aren’t I disappointed that I’ll need to carry my walker, do I think it will take away from the beautiful dress, didn’t I wish I had gotten those surgeries so I could stand up straight up on the altar1? They act like it’s a tragedy, but I wouldn’t have it any other way. Sure, maybe I don’t walk the way everyone else does. I’m slow, and some people may say I wobble, but it’s my way of walking. My movements are simply my own2. My walker doesn’t take away from my beauty, it adds to it. And I get to hear the wedding song play a little longer which is obviously a plus. 

I look around at all the people looking at me. Every face I know so well, watching me make these important steps. I can barely look up at my soon to be husband. I know he’s crying, which I know will make me cry. We are both so emotional when it comes to this stuff, which is just one of the reasons why I love him. This is his first time seeing me in this dress. I picked it out with my mother months ago after visiting every shop in every town nearby. It’s perfect. It took longer than I would have liked for them to finish the alterations to ensure the perfect fit to my body, but in the end it was worth it. When I reach him, finally, and am standing across from him in front of the most important people in my life, I can’t help feeling lucky. In this moment, in this spot, in this dress, I feel entirely me. I feel at home, and I wouldn’t change a thing. 

_______

1. Reference to Sheila Blacks poem “What You Mourn” 

2. Final line from Jennifer Bartlett’s poem “Five Poems from AUTOBIOGRAPHY”

Write Up (613 words): 

Sheila Black’s poem “What You Mourn” discusses the feelings of a disabled woman whose body was surgically altered when she was young to straighten her body. The speaker mentions how a doctor told her “now you will walk/ straight on your wedding day”(Black, 3/4). This really stood out to me, and inspired my idea for my project. In response to this poem, I created a painting of a disabled woman on her wedding day accompanied by a short point of view writing of how she feels on this day using language from the poems we read in class, including “What You Mourn” and “Five Poems from AUTOBIOGRAPHY” by Jennifer Bartlett. 

For my painting, I chose to paint a bride using a walker on an abstract background. I did this because I wanted the focus to be on the woman and her thoughts, and to show that she is deep in thought in this moment. When I first started this project, I spent a lot of time determining how I wanted to draw her. I wanted it to be clear she had a disability, but I wasn’t exactly sure how I should do that. I remembered what Kenny Fries said when I saw him speak. He told a story about how he modeled for a drawing, but was told that the final project didn’t make it clear he had a disability despite him thinking it looked exactly like him. The person judging the art piece had an idea of what a disabled body should look like, so the person wasn’t able to see the image for what it was. I looked up photos of disabled women who used walkers on their wedding day, and used these images for inspiration. Many of them looked like any other bride, just with a walker in front of them, which was usually decorated and had the bouquet attached. The final image I created was of a woman using a walker as she walked down the aisle to go along with the moment she is thinking about in the written portion.

For the point of view writing, I had a few more decisions to make. As someone who doesn’t have a physical disability, I wanted to make sure I wasn’t putting words into the mouth of my character. Instead, I tried to pull language and themes from some of our poets from this semester that described their movements and the way they felt about their body and disability. The poems I mainly pulled from were Sheila Black’s poem “What You Mourn” and “Five Poems from AUTOBIOGRAPHY” by Jennifer Bartlett. I also didn’t want to focus entirely on her disability because a criticism of the poems seemed to be on others’ focus on aesthetics despite the speaker’s personal feelings. I also didn’t think her disability would be the only thing she would be thinking about on her wedding day. I wanted the focus to be on the happiness she felt in the moment and how good she felt in her body, in contrast to how the speaker in “What You Mourn” described how she felt in her body. I also wanted to make a reference to the comment the doctor made in this poem to point out the way people seemed to care more about her appearance than the way the speaker felt.   

My goals for this project was to respond the Sheila Black’s poem “What You Mourn” and portray a happy disabled woman on her wedding day. Because the poem talks about people focusing on her appearance while disregarding how she felt, I wanted to both include a visual photo and a written portion of how my character was feeling. 

Citations:

Black, Sheila. “What You Mourn.” dis/lit fall 2021, http://dislitfall21.chris-foss.net/wp-content/uploads/2020/02/sheila-black.pdf. Accessed 2021..

Bartlett, Jennifer. “Five Poems from AUTOBIOGRAPHY.” dis/lit fall 2021, http://dislitfall21.chris-foss.net/wp-content/uploads/2019/03/Bartlett.pdf. Accessed 2021.

I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work. – Emily Malone